Additional support for your condition

Where to get help and support

It can often feel like a lonely world when you have a rare condition but we are pleased to say there is a lot of support out there from organisations and others with similar conditions.

Eye conditions, including eye-related conditions:

Achromatopsia Network
Age related macular degeneration
Albinism albinism.org.uk and www.albinism.org
Alstrom syndrome
Birdshot Uveitis
Cataracts
Colour blindness
Diabetes
Dyslexia
Dystonia
Glaucoma Association
Keratoconus
Laurence-Moon-Bardet-Biedl syndrome
Marfan syndrome
Micro and Anophthalmia
Monocular vision
Neurofibromatosis
Nystagmus Network
Punctate Inner Choroidopathy
Retinoblastoma
Sight loss
Stickler syndrome

If there are any organisations which have been of help to you, please let us know and we will add them to our list of contacts.